Hello everyone and welcome back to My Blurred World.
I hope you’re all doing well.
Today I thought I’d share a post about a topic that I don’t often talk about here on my blog which is Chronic Fatigue syndrome.
Today marks the first day of the Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (M.E) awareness week for 2016. You might not be aware of the fact that I do suffer with this chronic illness (also considered a disability) which is Chronic fatigue. I have written a blog post previously talking about my experience living with chronic fatigue which you can read here if you’d like to seek more background knowledge of this condition.
(Photo description : The above photo displays the thumbnail for this particular post which is a white background with black writing which says ‘Chronic Fatigue/M.E awareness week’. There is a blue ribbon displayed beside the text as blue is the colour associated with this condition).
I acknowledge the fact that I probably should have informed you of this awareness week before hand but my spare time has been limited recently therefore I haven’t been able to do so. But i thought it would be appropriate to publish this post for you today seen as it is the first day of the awareness week.
In this post I hope to inform you about what chronic fatigue/M.E is by also giving you a little update about how I’m feeling and how I deal with this chronic illness, I will also talk you through what the aim of this awareness week is. I hope you enjoy and that this post will be of interest to you.
I might repeat some of the points included in my ‘Living with chronic fatigue’ post therefore if you’ve read that post and find some aspects of today’s post to be a bit repetitive then I apologise for that in advance.
It is debated that Chronic Fatigue (CFS) and M.E should be recognised as two separate conditions and some say that CFS is merely a symptom of M.E but I consider both to be the same and this is why I might refer to my condition with both terms in this post.
Symptoms vary for each individual, some peers are able to cope with this chronic illness better than others and this is why I can’t speak for everyone when writing this post. What you are about to read is the story of my personal experience which might be completely different to another person’s story which I’m sure you can appreciate.
I’ll begin by talking you through some of the symptoms that people associate with CFS/M.E and then I’ll talk you through my personal symptoms and how I deal with them on a daily basis. CFS/M.E is a condition defined by the presence of many symptoms which can include unrefreshing sleep, muscle pain, cognitive dysfunction (‘brain fog’), sensitivity to sound and light, depression, anxiety, irritability and mood swings. Other symptoms may include allergies or sensitivities to food, digestion problems, chills and night sweats, dizziness and fainting. As I said the symptoms vary for every individual along with their severity but it is apparent that lack of energy and ‘brain fog’ is a common symptom amongst those who suffer with CFS/M.E.
I don’t desire to go into too much detail about my symptoms but due to living with this condition I often suffer from severe tiredness, feeling light-headed, weak and some days I just feel physically drained. Ironically I feel like this today as I’m writing this post for you. I do also suffer from anxiety and I do have food allergies but I’m not sure if this is a factor of my chronic fatigue.
CFS/M.E is a constant threat in the back of my mind as I know that I can’t do too much activities on the days I feel ‘ok’ as it will affect my body on the following day, this is what I like to call a ‘boom and bust’ situation which means that if I do too much on the days I don’t feel too bad I end up returning to square one on the following day which means that I’ve ‘over-worked’ my body when I shouldn’t have. This is why living with this condition can prove to be very difficult as it can impact on one’s quality of life. I attempt to keep a balanced lifestyle due to my chronic fatigue, by this I mean that I don’t do too much activities on the ‘good days’ and I also try to do some form of exercise on the ‘bad days’ as according to my physiotherapist this is the best way to keep that balance. Of course that can prove to be very frustrating as I have to restrict myself on those ‘good days’ from doing too much as I know it will affect my illness on the following day.
I believe that CFS/M.E is an over-looked chronic illness and can often be misdiagnosed. My diagnosis was a very long process and the doctors weren’t sure what condition my symptoms were associated with but following a number of different blood tests I was finally diagnosed with CFS in June 2014. It is apparent that the condition lasts a different amount of time for every individual, it can last weeks, months or even years. As I said I was diagnosed in 2014 but my symptoms were noticeable quite a few months before my diagnosis in June of that year. My symptoms are still existent and I still experience those days of feeling like I can’t do anything which is very saddening for me as I would love to go out and about without having to consider my chronic fatigue but unfortunately at this moment in my life I just can’t do so. But as I’ve mentioned above, I am attempting to balance things out but in some cases this might not be possible, take sixth form for example, there’s assignments to complete and revision to be done therefore it’s hard to cope with this at times but I attempt to find my way around it and although it can be difficult I’ve been able to complete all my work on time which I’m proud of.
CFS/M.E awareness week is aimed to raise awareness of this debilitating condition. People of all ages can be affected by CFS and this awareness week hopes to educate the public on this chronic illness in the hope of raising funds for support and research. There is no known cure for Chronic fatigue as of yet and this is why raising awareness of the condition is very important to inform the public of the struggles we face in the hope of raising money whilst doing so to increase the researching that goes into this particular illness.
Many people who are affected by Chronic fatigue also participate in the awareness week, further increasing knowledge and understanding whilst providing encouragement and support for sufferers.
CFS/M.E awareness day is also included in this awareness week. On May 12th people from all over the world join forces to raise money for M.E by holding events, sponsored walks etc. Many people wear something blue on this day to raise awareness of Chronic fatigue as this is the colour associated with the illness.
If you would like more information about Chronic fatigue/M.E the you can visit the M.E Association website or feel free to comment any questions you may have below or e-mail me at : firstname.lastname@example.org
You are in power now, use this to your advantage, let’s work together to stop the suffering and spread the word about Chronic Fatigue/M.E.
Thank you all so much for taking the time to read this post. I hope it helped you gain a better understanding of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis. And be sure to wear something blue on May 12th!
Please leave any comments you may have as I would love to hear from you. Again thank you for reading. I hope you enjoy the rest of your week. Be sure to join me next time in My Blurred World x